Wednesday, April 22, 2015

It's over.

We broke up.  It was a long time coming, if I’m being honest.  Although our lives had been inexplicably intertwined for what seemed like my entire life, the last thirty-plus years had found us in a love-hate relationship that saw two particularly ethereal years that resulted in the most amazing people on the planet – namely my children.  The rest of the time, I didn’t seem to get much out of the union except pain, irritability, and unpredictable behavior.  So, after much soul-searching, seeking guidance from professionals, and counsel of family and friends, I decided to call it quits.  We’re done.  

My uterus and I have been surgically separated forever.

I know that not all readers will be interested in the medical details of my predicament so, for those of you who don’t, STOP READING!  But, for the purposes of medical posterity, I’ll share all of the gory minutia.

The final decision came after a 15-month long diagnostic search with two doctors, dozens of tests, and more blood than should reasonably escape one body without resulting in death. 
Last year, I finally consulted my regular nurse practitioner about my periods changing.  Although they were coming at regular intervals and lasting about the same amount of time, they were becoming more and more red, contained more and more clots, and resulted in pain primarily on my right side.  She did a pelvic examination and ruled out cervical cancer via a pap smear, but was not able to palpate my right ovary.  So, I was sent for an internal ultrasound.  The technician, once again, could not locate my right ovary, and the radiologist concluded it may have been hiding behind my colon.  Other than scar tissue on my uterus from my 21-year old caesarian section, there was nothing of value found.

Shortly thereafter, my oldest brother passed away (that’s another post), and my stressed out body threw itself into a 7-week long period.  Yes.  Seven weeks. Without stopping.  For Seven Weeks. Seven. **sigh**

After returning from the funeral and consulting with my NP again, I was referred for a uterine biopsy.  I chose an Ob/Gyn that my daughter enjoyed working with in the maternity department, Dr. Steven Thackeray, and called to make an appointment.  It would take five weeks to get in.  Hmmm . . . he’s either really good, or really handsome.  (Turns out, both.)  After the long, long, long, wait, I endured a less-painful-than-expected biopsy, and then began the long, long, long, wait for the results.

I’m not a fan of ‘the call.’  It doesn’t matter what the subject is, if you’re expecting ‘the call,’ it is not usually a fun wait.  Nor was this.  And, it turned out my trepidation was not unfounded. I was diagnosed with complex endometrial hyperplasia without atypia. 

According to WebMD, death was imminent.  Fortunately, I had the wherewithal to research further, and found out that, complex endometrial hyperplasia occurs when the lining of the uterus doesn’t shed. Instead it builds up and crowds in the uterus. [Side note: I found this odd, since my periods had been hellacious and showed no signs of ‘not shedding.’] These crowded cells increase the risk of developing into endometrial cancer. Simple endometrial hyperplasia is easily treated and less than one percent of patients develop cancer. Complex endometrial hyperplasia is a type of hyperplasia where the lining is even thicker. ‘Without atypia’ indicates the cells are thicker than simple hyperplasia, but are normal in appearance. Patients have a 10% higher risk of developing cancer. 

I was given several options for treatment, one that my doctor recommended which, of course, is the one I chose.  I scheduled my hysterectomy for mid-April, citing all of those unimportant yet critical timing issues like a class I was scheduled to teach, a co-worker who was already on a leave of absence, being mid-term at school, blah, blah, blah, and ended up taking norethindrone (a form of progesterone) to keep the condition from progressing.
On April 15, I went in for my pre-op appointment to learn exactly what would happen the next day and ask any last-minute questions.  I called the nurse later that day and was given the instruction to not eat or drink past midnight, shower, don’t shave, hold off on my medications the night before, and report for surgery at 5:30 a.m. 


The next morning, “naughty me” had ½ mug of coffee, trying to preempt a caffeine headache as I pulled out of my anesthesia, which resulted in a four hour delay.  Apparently, my understanding that avoiding food and drinks the night before a surgery would prevent throwing up after waking up was incomplete.  There is also a risk of throwing up during the surgery, causing aspiration and possibly death, and the proteins and enzymes in food cause medications given before, during and after surgery to react differently in our bodies, which can have fatal results.  The anesthesiologist, thankfully, refused to take the risk.  All in all, it was worth waiting the four hours, but I felt bad that they had to swap me with a later-scheduled patient to take my early spot and delay their whole surgical day about an hour because of my indiscretion.  Needless to say, that caffeine headache was well-kicked in by the time I went in for surgery at 11:45, let alone when I woke up.  C'était ma faute.  Note to self, follow directions.



My pre-surgical nurse, Stephanie, was very sweet and understanding, and allowed us to sleep in the room for a while until it was time to ‘go upstairs.’  A nice technician wheeled me to the second floor, where I said goodbye to Dave, and parked me in a hallway with a white board on the wall at my feet indicating my doctors, nurse (Heireann – pronounced ‘Erin’ – only in Utah), anesthesiologist, surgical tech, and arrival time.  One by one, each practitioner came to my bedside to introduce themselves, ask questions about my current status, and assure & reassure me. 

The anesthesiologist finally wheeled me into the surgical suite, which was large and well appointed.  As instructed previously by my nurse, I clarified where I was to place my tailbone when I scooted over to the surgical table . . . I heard Dave’s voice say hello as I was wheeled through a door somewhere . . . and I was in my room being introduced to Diana, the first of three delightful nurses, and Emily, one of two CNAs that would take perfect care of me over the next twenty-something hours.  At least that’s all the drugs would allow my memory to retain. 

In the meantime, while I was blissfully unaware, my uterus, fallopian tubes, and cervix were disconnected through three laparoscopic incisions – one in my belly button, and one on each side of my abdomen about an inch lower – and then removed vaginally, intact in case of any cancer cells having developed.  The surgery took about two hours.  We would find out later that there was very little bleeding, no complications, and that my ovaries appeared to be completely normal (even the rogue right one), so they were left in place, avoiding the need for future hormone replacement therapy.  I spent the next hour or so in a recovery room, shrouded by a curtain from the many others groggily awakening from various levels of unconsciousness.  I was wheeled to the third floor of the women’s center and settled in a comfortable, private room, where I would spend the next few hours waking up.

For some reason (perhaps my 40+ years of knowing that wetting the bed was not preferred) my body would not pee in a bed pan.  Unfortunately, I had to go, and made the mistake of attempting to get to the bathroom – assisted by Diana and Emily – after just 2 hours post-surgery.  I passed out twice, and a crisis team had to be called in to get me safely back into bed.  Dave had just headed down to the cafeteria to get some lunch and missed all of the excitement, much to his dismay.

Brian brought my mom to the hospital that evening, along with a beautiful bouquet of purple lilies (man, that boy knows his mama).  By about 10:00, I was ready to go to sleep and, just as the family was heading out, Dr. Thackeray headed in, giving a report of the surgery and checking to see how I was feeling. We were so glad that Dave was still there when he stopped by.





I had a relatively uneventful night, being taken care of by Denise and Katana, and eventually making it to the restroom without assistance.  By 10:00 the next morning, I was so ready to go home and get in my own bed.  After having chatted with the doctor earlier and received his blessing to go, my day nurse, Hillary, started the paperwork, ordered my prescriptions, and gave me all of the ‘getting-ready-to-go-home’ teaching info.  Dave, me, my great new mug, and my beautiful lilies were out of there at about 12:45, and not a minute too soon. 

I don’t really remember the next couple of days.  I think I must have mostly slept, although I know Dave did drive me to Starbucks once.  Priorities, right?  My biggest complaints, if you can call them that considering I just had an internal organ removed, are some dizziness and cramping.


My faithful recovery companions
My swollen belly
On Monday, Dr. Thackeray called to say the pathology report came back and there is NO CANCER!!!  Yet another miracle in my humble life. 

I’m now six days in, tire easily but am able to get around without much pain at all, and have yet to pop a narcotic.  I’m taking it easy, and enjoying company, flowers, and sweet treats from loving neighbors, friends, and family.


From my neighbor, Jennifer Kerr (these came along with cupcakes, which were promptly devoured)
From my BFF, Shannon Thomas
From my coworkers, along with a cute get-well balloon
I would say that this break up was a positive experience, and I’m looking forward to discovering all of the positive ways that my future is affected by having removed a toxic and debilitating opponent removed from my life, and my body.  Good riddance, baby-making parts.  I'm done with you.